Defining the prevalence and symptom burden of those with self-reported severe chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a two-phase community pilot study in the North East of England.
Strassheim, Victoria Jane, Sunnquist, Madison, Jason, Leonard A et al.·BMJ open·2018
This study tried to find out how many people in Northern England have severe ME/CFS and what symptoms they experience. Researchers sent questionnaires to people with ME/CFS and then invited five participants to take part in home-based research visits. The study found that people with severe ME/CFS want to participate in research but struggle with their high symptom burden and poor quality of life, which makes completing research visits challenging.