Classification Accuracy and Description of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in an Integrated Health Care System, 2006-2017.
Liles, Elizabeth G, Irving, Stephanie A, Koppolu, Padma et al.·The Permanente journal·2024
This study looked at how often ME/CFS is diagnosed in a large health care system by checking electronic medical records from 2006 to 2017. Researchers found that while doctors used ME/CFS diagnosis codes for over 500 patients, only about 34% of the cases they reviewed actually matched the real diagnostic criteria for ME/CFS. This shows that relying only on diagnosis codes in medical records can give an inaccurate picture of how many people truly have ME/CFS.