The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and chronic fatigue syndrome.
Jason, Leonard A, Holtzman, Carly S, Sunnquist, Madison et al.·Journal of health psychology·2021
This study created a new questionnaire called the DePaul Post-Exertional Malaise Questionnaire to measure post-exertional malaise (PEM)—the worsening of symptoms that happens after physical or mental activity in ME/CFS patients. Researchers worked with hundreds of patients to develop questions that accurately capture what PEM feels like. Early testing showed the questionnaire works well and connects meaningfully with how much physical activity patients can do.