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I'm severe or mostly bedbound
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Guidance
- This page is designed for limited energy. Read one thing, then stop. Come back when you can.
- If reading is too much right now, that's okay. Ask someone you trust to read for you and summarise.
- There is no urgency. The information here will wait for you.
If you read one thing
Quick read · 30 sec
Overview of severe ME
What severe and very severe ME/CFS looks like, and why it's often invisible.
Read this →Recommended reads
Understanding Post-Exertional Malaise
Quick read · 30 sec
How PEM can be triggered by very small amounts of activity in severe ME.
NICE guidelines on ME/CFS
Quick read · 30 sec
Clinical guidelines that emphasise rest and warn against exertion in severe ME.
The Human Burden of ME/CFS
Quick read · 30 sec
On grief, loss, and the psychological weight of living with a severe illness. Short sections available.
More resources are available in the Atlas and Evidence sections.