ME/CFS Evidence Browser — Classified Studies on Myalgic Encephalomyelitis

81–100 of 516 studies

E2 ModerateCohortPEM unclearObservational

Assessing the influence of lived-experience experts on healthcare providers in a virtual community of practice: a qualitative study.

Weaver, Stephanie Sargent, Carry, Monique, Bertolli, Jeanne et al.·Frontiers in health services·2025

This study looked at whether having patients with lived experience of Long COVID and ME/CFS help teach doctors made a real difference in patient care. Researchers tracked what these patient-experts recommended to doctors through online training sessions from 2022-2024, and then asked actual patients if their doctors seemed to apply that advice. The main recommendations focused on validating patients' experiences, showing empathy, helping with referrals, and supporting self-care. Patients reported noticing positive changes in how their doctors treated them, suggesting that including patient-experts in medical education actually works.

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Assessing the influence of lived-experience experts on healthcare providers in a virtual community of practice: a qualitative study.

Defining a High-Quality Myalgic Encephalomyelitis/Chronic Fatigue Syndrome cohort in UK Biobank.

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome After SARS-CoV-2 Infection.

Illness presentation and quality of life in myalgic encephalomyelitis/chronic fatigue syndrome and post COVID-19 condition: a pilot Australian cross-sectional study.

[What Medical Specialties do ME/CFS Sufferers Consult? A Public Health Study on the need for Better Medical Education and Training].

The German Multicenter Registry for ME/CFS (MECFS-R).

Validity and diagnostic overlap of functional somatic syndrome diagnoses.

Frequency and characteristics of chronic fatigue syndrome in multiple sclerosis patients at a university hospital in Eastern Saudi Arabia.

[Systems thinking, subjective findings and diagnostic "pigeonholing" in ME/CFS: A mainly qualitative public health study from a patient perspective].

Factors associated with having previously received a diagnosis of fibromyalgia, chronic fatigue syndrome and irritable bowel syndrome: A cross sectional DanFunD study.

Classification Accuracy and Description of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in an Integrated Health Care System, 2006-2017.

Psychometric evaluation of the DePaul Symptom Questionnaire-Short Form (DSQ-SF) among adults with Long COVID, ME/CFS, and healthy controls: A machine learning approach.

Health system support among patients with ME/CFS in Switzerland.

Health outcomes of sensory hypersensitivities in myalgic encephalomyelitis/chronic fatigue syndrome and multiple sclerosis.

Serum GDF-15 Levels Accurately Differentiate Patients with Primary Mitochondrial Myopathy, Manifesting with Exercise Intolerance and Fatigue, from Patients with Chronic Fatigue Syndrome.

A Quick and Practical Approach to Secure a Chronic Fatigue Syndrome Diagnosis: The Novel Functional Limitation Index.

Severe myalgic encephalomyelitis/chronic fatigue syndrome in children and young people: a British Paediatric Surveillance Unit study.

Developing a Blood Cell-Based Diagnostic Test for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Using Peripheral Blood Mononuclear Cells.

Different risk factors distinguish myalgic encephalomyelitis/chronic fatigue syndrome from severe fatigue.

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and COVID-19: is there a connection?

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